PPS Links and Books
The Internet is a great place to search for PPS information. If you have a favorite, send me the link.
The Salk Institute put together a great site where PPS folks can learn about polio and PPS, meet other PPS folks, and join the international community. See videos, submit a video of yourself, ask questions, hear PPS specialists talk. View all 3 Breathing & Sleep Symposiums held at The Salk Institute. It's great!
San Diego PPS Support group
What's happening in the country's lower left corner?
Post-Polio Health International
They have been around forever, mail out two newsletters (by subscription only), and have a data base of doctors, clinics, and support groups around the country.
Unless otherwise specified, books are available from Amazon.com and other booksellers.
Managing Post-Polio, A Guide to Living and Aging Well with Post-Polio Syndrome
by Lauro S. Halstead, M.D.
Dr. Halstead, a polio survivor, is on his second edition of this very popular guide book. The book also includes contributions from several well respected polio survivors and researchers. It's full of good advice and
NRH Press, paperback $13.95 + $4.25 S&H, volume discounts for group orders. 202-877-1010, www.nrhrehab.org
The Polio Paradox, What You Need to Know
by Richard L. Bruno, H.D., Ph.D.
(From the cover) Uncovering the hidden history of polio to understand and treat "post-polio syndrome" and chronic fatigue.
This very popular book has been used as a reference by many PPS people at meetings around the country.
Post-Polio Syndrome, A Guide for Polio Survivors and Their Families
by Julie K. Silver, M.D.
Extracted from her clinical experiences with polio survivors. Very interesting and often familiar stories.
Polio: An American Story
by David Oshinsky
Highly praised personal account of the polio experience.
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